Our week so far

This is the closest to a happy photo of have of 'Lego' this week, even though today he's been all smiles - even the speech therapist got one! He has some recognition for the camera though, and the minute it comes out, away go the smiles. Or maybe he's just been listening to Tyra and is "smiling with his eyes".

Anyway, we've had a pretty eventful week. I slept over Monday, Wednesday and Thursday - for the last two I wised up and joined the other moms in bringing a blanket and sleeping on the floor. It is WAY more comfy than the chairs. I'll try to get a picture of our setup if I stay over again. I don't think it would fly with the health regulations in the US or Britain. Too many roaches for one! Tiffany would hate them, but I've started giving them names :-)

On Tuesday Lego seemed to be doing really well, so I left him and slept at home - when I got in the next morning I found him like this -
- ok, well maybe not quite, he was sleeping (the photo was taken later while I was making him do his OT exercises), but he had a nasal-gastric tube put in because the nurses (and, admittedly, myself) were struggling to feed him. Understandably, he does NOT love it. Little did he know it would get worse!

Wednesday he was a champ and feeling lots better. He was awake the whole day, but then around 6 I could see his color was getting worse. He threw up EVERYTHING over his entire cot after the 9:00 feed, and it was bright yellow which I figured probably wasn't great. According to the sisters (nurses) it was just milk, but I am still not convinced. Anyway, I decided I should stay the night, which was a good call. By the morning rounds his oxygen levels were so low that they had to put him on an oxygen tube too! We had fun trying to convince all the tubes to stay on his little face. This is how he looks today, after he'd thrown up last night and they had to re-do the tubing.
He is doing better today again, still a little lethargic in the morning but very chipper this afternoon. Although he did throw up twice after 2, so I am praying very hard that he won't continue the trend tonight. I spoke to the nurses about the need to watch him carefully, so hopefully it will all be fine. I'll go through around 8am tomorrow and sit with him again.